Sunday, December 3, 2017

Happy Birthday, Porter!




Porter turned two years old today.  Most parents will say how fast the time goes; "I can't believe he's already two!"  Although we have a touch of that, the more predominant feeling is "Wait, he's only two!?"  Our family has overcome some pretty crazy challenges in Porter's lifetime which makes it feel like he's been with us longer than two years.

This year we have a lot to celebrate and be thankful for.  Porter is now 6 months post-transplant!  He is down to 4 medications per day and, just this week, came through his first illness without hospitalization!  We all got to stay home and be sick together...it was great! Ok, so maybe not GREAT but such a relief to know that he is allowed to get sick now.  Before transplant if Porter had a stomach bug like he did last week we would have been visiting our friends in the UVMMC PICU within a couple of hours of onset.  This time around we gave our team in Boston a call and they told us to try to keep the Pedialyte flowing through his g-tube and just wait it out.  His body can handle it.  How awesome is that!?

Porter is growing and developing like a normal two year old.  His favorite part of Thanksgiving dinner this year was the turkey.  The pumpkin cheese cake was a close second.  His verbal communication skills are coming along.  He loves drawing and play dough and he can't get enough of tractors and trucks.  Oh, and  you should see him dance...pure joy.