Back on Track

Author:  Sarah

Chris and Katie surprised us by arriving Sunday evening.  He said that he woke up Sunday morning and decided he couldn't wait another two days so he packed the car, sent Katie for a play date, and went to school to wrap things up before they hopped in the car at 1:30 pm for the now familiar drive to Boston.  I was so happy to see them and took a giant gulp of fresh air as Katie and I walked out of the hospital.  Chris' sister, Lindsay, picked us up and we spent the last two nights in East Boston watching the huge ships in the harbor for the Sail Boston Festival.

Porter came off of the IV antibiotics and fluids yesterday.  Unhooked again!  The team also took down the contact precautions signs. And, two of the three drainage tubes from his abdomen have been removed. With a potential infection thwarted, positive liver signs, and good healing at the graft site, the transplant team set a goal for hospital discharge for Friday! If things keep going well, his central line will be removed (not the port) and we will leave BCH to stay locally at our hotel until Monday. Thanks to the Farrell family, especially Grandma Pat, for sponsoring our killer hotel accommodations this week!

Porter's stomach seems to be mostly back to normal and he is tolerating his feeds well. We haven't had much time for focused eating work with him, so it's G-tube formula for now. But, we look forward to getting back to eating practice when we get home.

Photo binge...

Father's Day ice cream treat in Quechee.
I guess the scoops at Quechee Snack Bar are larger than our scoops at home!

Doing laps around  BCH 10 South, Transplant Floor

Porter's Penthouse

Catching up on our reading

Dad must have said something funny.

All smiles in the entertainment room.