Our story is about our family in Vermont. We also write about our experiences helping our son overcome the challenges of a genetic metabolic disorder and the organ transplant that changed his life.
Monday, July 17, 2017
A break from Boston
Since we were discharged from Boston on Thursday, the transplant team told us to take this Monday off, and return to Boston on July 24. But, still in need of some blood labs, we visited our good friends at the Infusion Bay at UVM Medical Center. Porter immediately recognized the children's clinic and ran down the hallway to the Infusion Bay! Katie reunited with her favorite hospital volunteers, and child life specialist Jenny, and got right to work on some new craft pieces while Porter worked with the nurses.
We also stopped by PICU so Porter could show off his new "shark bite" scar. Always nice to be in PICU under happy circumstances!
We hope we get to see more and more of our favorite UVM doctors and nurses as our Boston team slowly becomes comfortable with another team taking on the majority of his analysis and care.
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